9 Customer Reviews
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Review from Angela C
5 stars06/27/2024
I've had a mostly positive experience with Rare Patient Voices. After trying to get selected for campaigns due to their high research payout, I was delighted when I finally got picked. Though I experienced an issue when my case payment via check was repeatedly declined by ******, ********, I applaud the swift and helpful response from Rare Patient Voices upon emailing them about my predicament. Their effort in trying to resolve the problem was commendable.Review from Kaya W
5 stars04/17/2023
Love this research company. Has been very helpful in making money to assist with the bills! I haven't really had an issue in receiving the incentives promised to me, but the one time I did have a discrepancy in the promised incentive the service team was extremely prompt in contacting the researchers and fixing the error. This is a company that stands by their patients. It's on my list of the best study websites with monetary incentives, and it makes me sad to hear there are people claiming it's a scam. I can understand some of the complaints about never getting qualified for anything and never receiving studies. I have quite a few diagnosed chronic diseases, however the only studies I manage to get are those for the more rarer diseases. Most research currently being done at the time does not solely focus on psychological diseases, so getting a study that's looking for those with depression, anxiety, ADHD, etc., is a bit unlikely. All in all, honest and responsible company, good incentives for the work required in studies, and a website that is very easy to navigate. Thank you, Rare Patient Voice!
Rare Patient Voice, LLC Response
04/18/2023
Thanks so much for your positive review. We aim to please all patients and caregivers.Review from Tdj J
1 star03/20/2023
This is a scam. You end up providing very sensitive, personal information, but then never qualify for surveys. Do not sign up with this scam.Rare Patient Voice, LLC Response
03/23/2023
Thanks for trying to participate. Not everyone qualifies for every study, our clients determine the qualification criteria. But we are not a scam! We've paid patients and caregivers over $10 million since our founding 10 years ago. Patients rate us 9.4. out of 10 on their overall experience. When you don't qualify, please ask the project manager - often they will be able to tell you why. And when you don't qualify, your data is not used.Review from Mayen H
5 stars08/15/2022
Truly valid company. I have been doing surveys for over 2 years.Rare Patient Voice, LLC Response
08/17/2022
Thanks for taking part and for sharing your opinion!Review from Jama R.
5 stars08/02/2022
Great information and staff (Chantel, Kirk, and Emily) are fantastic! Highly, HIGHLY RECOMMEND!Rare Patient Voice, LLC Response
08/05/2022
We're glad you had a great experience!Review from Terry F
5 stars07/25/2022
I have use them for years now. As I am on disability, this really helps with making a little extra money. They have always been great and reliable. Any problems.. they fix it. Any questions, they have you. I definitely recommend. 100 times over!!Rare Patient Voice, LLC Response
07/28/2022
Thanks so much for the positive comment! We hope all our patients and caregivers have the same great experience!Review from Karl K
5 stars03/22/2022
Rare Patient Voice offers many opportunities, if you qualify, to take part in studies that offer a nice cash reward after you take part. Most recently I've done one for Bipolar, which paid out $50.00, and another one related to liver conditions, which paid out $25.00. Right now, they send you a check in the mail once you've completed your study, Soon, they may be sending rewards electronically. In any case, the studies are easy to do and the rewards are generous.Review from ificouldonlyhelp
5 stars03/07/2022
RPV is great. I have done atleast a few surveys with them, and they DO pay you.Review from Angela M
1 star01/03/2022
I qualified for a Lupus survey for $50.00, I completed the survey and at the very end I was told thank you but we are filled with participants. I spent 45 mins taking this survey. They scammed me, got all my info for their use and now don't want to pay me what they owe me!!!!!Rare Patient Voice, LLC Response
02/20/2022
We pay participants as fast a possible as soon as a study is closed. Once our client confirms the study has closed and who has completed, we submit their checks for payment on that Friday, and the checks go out by Monday or Tuesday of the next week. In this case, the client has not confirmed if the participant did take part. We are in constant contact with both the client and the participant as to the status.
We never "scam" anyone. If a person doesn't qualify for a study, none of their information is every used. And if a person takes over 10 minutes to determine if they qualify, we make sure they are paid for their time. We have paid over $8 million to participants in our studies.Customer Response
02/22/2022
This is not true! I just took another survey from them and haven't received payment yet. This was a $20 survey and that was weeks ago. As far as you getting paid if it takes you over 10 mins to qualify, WRONG!!!!! I promise they don't compensate you for this. I wanted to give them one more chance by taking a survey for them, where's the payment? They are not so called scammers but why does it take months to get paid??? Then they deleted my acct and had to reopen it because I filed this complaint. I just want my money, I helped them by taking a long survey, when willi get payment in 6 months??????????????????????????????Rare Patient Voice, LLC Response
02/22/2022
If she would contact us, we could help her. She should contact Kirk M*****, at ***********@rarepatientvoice.com or 410-********Rare Patient Voice, LLC Response
03/21/2022
To follow up, the patient was paid $50 for participation on project M******** at the same time all other participants were paid. This was at the end of the project in accordance with our policy of paying when a project closes. We have maintained this policy since the inception of Rare Patient Voice. In an email from *********** we stated this will be our policy for the foreseeable future and since the patient takes issue with this policy we can certainly remove them from the panel so they won't become frustrated. We also asked if the customer would post an update here in BBB but we have yet to receive a response.Customer Response
03/22/2022
Update: I did FINALLY receive payment. This is a great company to do surveys for. They are totally legit!!!
Customer Review Rating
4.11/5stars
Average of 9 Customer Reviews
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